Co-Chairs: Carl & Lola Centeno, email@example.com
Vice Chairs: Jim & Nancy Weir (Southern region)
Vice Chair: Karren Nelson (Northern region)
Adult Regional Coordinator: Brooke Alisha, firstname.lastname@example.org
Fundraising Coordinator/Step Forward to Cure TSC Chair: Lauren Lemons
Chair, Step Forward to Cure TSC Dayton: Lauren Lemons
Chair, Step Forward to Cure TSC Cleveland: Michelle Blood
Cleveland Clinic Ambassador: Donna Kebbel
Columbus TS Clinic at Nationwide Children's' Hospital & Cincinnati Children's Hospital Medical Center Tuberous Sclerosis Complex Clinic Ambassador: Lola Centeno
To get involved or for more information, contact Carl and Lola Centeno at email@example.com. Join the TS Alliance of Ohio on Facebook.
February 15, 2014: Join the TS Alliance of Ohio for a Valentine’s Day and make up Holiday Party in Dayton, OH! Join us for an evening of food and fun while getting to know other TSC individuals and families. Download the flyer for more details.
November 16, 2013: The TS Alliance of Ohio held the first First Aid for Seizures training in Moraine, OH. This successful meeting allowed families to learn what to do when a seizure occurs, how to keep the patient and others safe, how to move a seizure patient safely, and when to call 911. Special thanks to Scott Henry, EMT for providing this valuable demonstration!
Special thanks to Dr. Darcy Krueger and his wife, Debbie for opening their home for another TSC community picnic on September 21, 2013! It was a successful event allowing the TSC community to network with one another and share an afternoon of food and fun.
Dena Hook of the TS Alliance presented “How to Be an Advocate for Your Child” in Miamisburg, Cleveland and Hilliard, OH throughout August 2013. These informative sessions gave parents of children with TSC valuable information for how to navigate special needs programs, be an advocate and ensure that their child is getting the best education. Huge thank you to Dena, Carl and Lola Centeno and Karren Nelson for their support in putting on these educational meetings for the TS Alliance of Ohio!
A big thank you to Dr. Steve Roach for opening our 2013 Step Forward to Cure TSC walk held in Huber Heights, Ohio on June 22, 2013, raising over $9,000. We had a great turn out on a very hot day. Thank you to everyone who walked to help find a cure for their friend/family member affected by TSC. Walk Chair Lauren Lemons did an amazing job again this year. Congrats Lauren!
The TS Alliance of Ohio hosted an educational meeting on Saturday, March 23, 2013 at the Moraine Recreation Center in Dayton, OH. Special thanks to Crystal Wilson, Paraprofessional at Dayton Public Schools, who spoke on transitioning from high school. Topics covered included guardianship, social security and waivers.