Co-Chairs: Carl & Lola Centeno, email@example.com
Vice Chairs: Jim & Nancy Weir (Southern region)
Vice Chair: Karren Nelson (Northern region)
Adult Regional Coordinator: Brooke Alisha, firstname.lastname@example.org
Fundraising Coordinator/Step Forward to Cure TSC Chair: Lauren Lemons
Chair, Step Forward to Cure TSC Dayton: Lauren Lemons
Chair, Step Forward to Cure TSC Cleveland: Michelle Blood
Cleveland Clinic Ambassador: Donna Kebbel
Columbus TS Clinic at Nationwide Children's' Hospital & Cincinnati Children's Hospital Medical Center Tuberous Sclerosis Complex Clinic Ambassador: Lola Centeno
To get involved or for more information, contact Carl and Lola Centeno at email@example.com. Join the TS Alliance of Ohio on Facebook.
November 16, 2013: Join the TS Alliance of Ohio for "First Aid for Seizures" from 6 to 9 pm at Payne Recreation Center, 3800 Main Street, Moraine, OH. Download the flyer for complete details.
December 7, 2013: A Holiday Party will be hosted by the TS Alliance of Ohio on December 7 from 2:30 – 5 pm in Brunswick, OH at the Brunswick Public Library in the Sycamore Room at 3649 Center Rd. Join us for milk and cookies with Santa! RSVP to Karren Nelson at firstname.lastname@example.org.
December 14, 2013: Join the TS Alliance of Ohio in Dayton for the annual Holiday Gathering 5 pm – Midnight. Come out for a great evening of food, family and friends at the home of Gary and Robin Fancher at 6240 Dayton Liberty Rd in Dayton, OH. Bring a covered dish to share! RSVP to Lola Centeno at 937-266-2293 or ohioTSC@yahoo.com.
Special thanks to Dr. Darcy Krueger and his wife, Debbie for opening their home for another TSC community picnic on September 21, 2013! It was a successful event allowing the TSC community to network with one another and share an afternoon of food and fun.
Dena Hook of the TS Alliance presented “How to Be an Advocate for Your Child” in Miamisburg, Cleveland and Hilliard, OH throughout August 2013. These informative sessions gave parents of children with TSC valuable information for how to navigate special needs programs, be an advocate and ensure that their child is getting the best education. Huge thank you to Dena, Carl and Lola Centeno and Karren Nelson for their support in putting on these educational meetings for the TS Alliance of Ohio!
A big thank you to Dr. Steve Roach for opening our 2013 Step Forward to Cure TSC walk held in Huber Heights, Ohio on June 22, 2013, raising over $9,000. We had a great turn out on a very hot day. Thank you to everyone who walked to help find a cure for their friend/family member affected by TSC. Walk Chair Lauren Lemons did an amazing job again this year. Congrats Lauren!
The TS Alliance of Ohio hosted an educational meeting on Saturday, March 23, 2013 at the Moraine Recreation Center in Dayton, OH. Special thanks to Crystal Wilson, Paraprofessional at Dayton Public Schools, who spoke on transitioning from high school. Topics covered included guardianship, social security and waivers.