Co-Chairs: David & Jody Long, Jody: email@example.com or 254-644-1420, David: firstname.lastname@example.org or 254-644-1646
Adult Regional Coordinator: Brooke Alisha, email@example.com
Chair, Step Forward to Cure TSC Dayton: Lori Quirino, firstname.lastname@example.org
Chair, Step Forward to Cure TSC Cleveland: Lola Centeno, email@example.com
Columbus TS Clinic at Nationwide Children's' Hospital & Cincinnati Children's Hospital Medical Center Tuberous Sclerosis Complex Clinic Ambassador: Lola Centeno
To get involved or for more information, contact Carl and Lola Centeno at firstname.lastname@example.org. Join the TS Alliance of Ohio on Facebook.
10/17/2015--Town Hall Meeting - Cincinnati, OH
"Clinical Research and Infantile Spasms: A Community Call to Action." Join us for this Town Hall educational opportunity to learn how groundbreaking clinical trials are working toward preventing infantile spasms and other types of seizures in TSC. Learn how and why TSC community involvement is crucial to the success of clinical research for individuals of all ages and what you can do to help. Click here for more information.
October 23, 2015: In partnership with The LAM Foundation, join us from 11:30 am to 1:30 pm for an educational meeting and luncheon for those affected by tuberous sclerosis complex (TSC) and Lymphangioleiomyomatosis (LAM). The most up-to-date research and clinical advances in diagnosing and treating TSC and LAM will be presented by leading experts including Dr. David Franz, Dr. Darcy Krueger and Dr. Frank McCormack. Lunch will be provided. Please RSVP to Kerri Byrnes at email@example.com or 877-287-3526.
The TS Alliance of Ohio hosted the annual summer picnic at the home of Dr. Darcy Krueger on Saturday, August 8, 2015. This successful picnic brought together more than 50 members of the TSC community. At the picnic, the transition of the chair position was announced. Carl and Lola Centeno stepped down and David and Jody Long were announced as the new co-chairs of the TS Alliance of Ohio!