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Current Events

September 2016

9/8/2016--Adults with TSC Topic Call - Nationwide
If you're an independent or semi-independent adult with TSC, plan to join us for this free one-hour call, entitled "Kidney Issues in TSC," presented by Dr. John Bissler, at 8 pm Eastern, 7 pm Central, 6 pm Mountain, 5 pm Pacific.  To participate, simply use the toll-free call in number: 1-866-613-5223 then enter access code: 4334003#. Please note the time zones and start times listed above.  If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

9/10/2016--LIDS Step Forward to Cure TSC – Gardner, KS

Join the TS Alliance of Greater Kansas City for the annual Step Forward to Cure TSC to be held at Longview Lake & Park, Shelter #13 in Kansas City, MO. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Amy Dublinske at dublinske@sbcglobal.net. For more details, visit www.StepForwardtoCureTSC.org.


9/10/2016--LIDS Step Forward to Cure TSC – St. Louis, MO
Join the TS Alliance of St. Louis for the annual Step Forward to Cure TSC to be held at Cliff Cave Park in St. Louis, MO. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Gwen Montaigne at tawanda1951@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

9/16/2016--2016 Vancouver TSC Educational Conference - Canada
Tuberous Sclerosis Canada Sclérose Tubéreuse (TS Canada ST) in partnership with the TSC Clinic at BC Children’s Hospital is pleased to host the 2016 family education conference in Vancouver for those with tuberous sclerosis complex (TSC), their families and their caregivers. This one and a half day conference will feature leading researchers and clinicians specializing in TSC (both local and from abroad) with topics relating to the latest research, diagnosis and treatment of TSC in both pediatrics and adults. Download the conference flyer and register online.

9/17/2016--LIDS Step Forward to Cure TSC – Pennington, NJ

Join the TS Alliance of New Jersey for the annual Step Forward to Cure TSC to be held at Rosedale Park in Pennington, NJ.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Tresha Bisang at jersey4424@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

9/17/2016--LIDS Step Forward to Cure TSC – Huntington, WV
Join the TS Alliance of Kentucky/West Virginia for the annual Step Forward to Cure TSC to be held at Pullman Square in Huntington, WV.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Tabitha Arnold at tabithaarnold@azzgalv.com. For more details, visit www.StepForwardtoCureTSC.org.

9/24/2016--LIDS Step Forward to Cure TSC – Auburndale, MA

Join the TS Alliance of New England for the annual Step Forward to Cure TSC to be held at Auburndale Park in Auburndale, MA.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Stacie Verrill at kscverrill@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

9/24/2016--LIDS Step Forward to Cure TSC – Wantagh, NY
Join the TS Alliance of New York and New Jersey for the annual Step Forward to Cure TSC to be held at Wantagh Park in Wantagh, NY.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Carol Ann White: carolannwhite@gmail.com or Lori DeStefano: jeepngirl44@aol.com.  For more details, visit www.StepForwardtoCureTSC.org.

October 2016

10/1/2016--LIDS Step Forward to Cure TSC – Hilton Head Island, SC

Join the TS Alliance of South Carolina for the annual Step Forward to Cure TSC to be held at Jarvis Creek Park, Hilton Head Island, SC.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Amy Bredeson at acbredeson@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

10/1/2016--Tournament for TSC Champions - Fisher, IN
Indiana Tournament for TSC Champions at River Glen Country Club in Fishers, IN.  Registration starts at 1 pm.  Download the registration brochure for complete information. Registration deadline is September 16, 2016. For more information, please contact David Cowlin at (317) 358-5083.

10/8/2016--LIDS Step Forward to Cure TSC – Houston, TX
Join the TS Alliance of Houston for the annual Step Forward to Cure TSC to be held at MacGregor Park in Houston, TX.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Gail Saunders at gsaunders@tsalliance.org. For more details, visit www.StepForwardtoCureTSC.org.

10/15/2016--LIDS Step Forward to Cure TSC – Miami, FL
Join the TS Alliance of Florida for the annual Step Forward to Cure TSC to be held at Florida International University, MMC Campus in Miami, FL.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Vanessa Vazquez at vanessavazquez@bellsouth.net. For more details, visit www.StepForwardtoCureTSC.org.

10/15/2016--LIDS Step Forward to Cure TSC – Allison, PA
Join the TS Alliance of Western Pennsylvania for the annual Step Forward to Cure TSC to be held at North Park Harmar Pavilion.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Kelsey Hudson at jjsmom0905@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

10/16/2016--LIDS Step Forward to Cure TSC – Clark, NJ
Join the TS Alliance of New York and New Jersey for the annual Step Forward to Cure TSC to be held at Oak Ridge Park in Clark, NJ.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Tresha Bisang at jersey4424@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

10/20/2016--Adults with TSC Topic Call - Nationwide
If you're an independent or semi-independent adult with TSC, plan to join us for this free one-hour call, entitled "Epilepsy in Adults with TSC," presented by Dr. Orrin Devinsky, at 8 pm Eastern, 7 pm Central, 6 pm Mountain, 5 pm Pacific.  To participate, simply use the toll-free call in number: 1-866-613-5223 then enter access code: 4334003#. Please note the time zones and start times listed above.  If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

10/23/2016--LIDS Step Forward to Cure TSC – Strongsville, OH
Join the TS Alliance of Ohio for the annual Step Forward to Cure TSC to be held at Cleveland Metroparks – The Chalet in Strongsville, OH.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Lori Quirino at lquirino@roadrunner.com. For more details, visit www.StepForwardtoCureTSC.org.

10/29/2016--LIDS Step Forward to Cure TSC – Fremont, CA
Join the TS Alliance of Northern California for the annual Step Forward to Cure TSC to be held at Olive Grove & Auditorium Space in Fremont, CA.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Bridget Britt at bridget.walsh216@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

November 2016

11/5/2016--Regional TSC & LAM Conference - Cleveland, OH
This one-day conference will provide educational outreach, information on the latest treatment and testing options, basic and transitional research updates, and support options for both TSC and LAM. Follow this link for more information.

11/12/2016--LIDS Step Forward to Cure TSC – Nasvhille, T
Join the TS Alliance of Tennessee for the annual Step Forward to Cure TSC to be held at Percy Warner Park in Nashville, TN.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Ginger Williams at gwilliams@tsalliance.org. For more details, visit www.StepForwardtoCureTSC.org.

11/16/2016--Adults with TSC Topic Call - Nationwide
If you're an independent or semi-independent adult with TSC, plan to join us for this free one-hour call, entitled "Open Forum," hosted by members of the Adult Task Force, at 8 pm Eastern, 7 pm Central, 6 pm Mountain, 5 pm Pacific.  To participate, simply use the toll-free call in number: 1-866-613-5223 then enter access code: 4334003#. Please note the time zones and start times listed above.  If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.