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Current Events

August 2015

8/29/2015--Macy's Shop for a Cause - Nationwide
The TS Alliance has partnered with Macy’s Shop For A Cause event! Purchase a $5 Shopping Pass* for 30% savings in every Macy’s store on Saturday, August 29, and the TS Alliance keeps 100% of the proceeds. Plus, you can enter to win a $500 Macy’s Gift Card!  To purchase passes, please contact Gail Saunders at gsaunders@tsalliance.org or call 800.225.6872.

8/30/2015--Family Picnic - Lee's Summit, MO
Join the TS Alliance of Greater Kansas City for the Annual Family Fun Picnic, starting at 12 p.m. in Lee’s Summit, MO. Please bring a side item to share. RSVP to Amy at Dublinske@sbcglobal.net or 816-820-2809.

September 2015

9/10/2015--2015 International TSC Research Conference - Windsor, UK
The 2015 International Research Conference on Tuberous Sclerosis Complex: From Treatment to Prevention will be held September 10-12 at the Mercure Windsor Castle Hotel in Windsor, UK.  Click here for more information.

9/11/2015--Camp Prime Time - Yakima, WA
Join the TS Alliance of the Pacific Northwest for a camping trip at Camp Prime Time from September 11-13, 2015! You won’t want to miss out on the campfire sing-alongs, marshmallow roasting, pontoon rides, a tree house and more! Everything is handicap accessible. Bring your family and spend the weekend getting to know other individuals and families affected by TSC. Cost is $25 per family and includes meals and lodging. Download the flyer for more details.

9/12/2015--Step Forward to Cure TSC - Auburndale, MA
Join the TS Alliance of New England for the annual Step Forward to Cure TSC to be held at Auburndale Park in Auburndale, MA.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Stacie Verrill at kscverrill@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

9/19/2015--Step Forward to Cure TSC – Wantagh, NY
Join the TS Alliance of New York and New Jersey for the annual Step Forward to Cure TSC to be held at Wantagh Park in Wantagh, NY. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Rob and Denise Spear at rspear96@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

9/19/2015--Tournament for TSC Champions - Fishers, IN
Plan now participate in the Tournament for TSC Champions at River Glen Country Club in Fishers, IN.  Registration deadline is September 3.  Download the event brochure for the mail-in registration form and complete details. For more information, please contact David Cowlin at (317) 358-5083 or cowlin@gmail.com.

9/19/2015--Town Hall Meeting - Issaquah, WA
"Clinical Research and Infantile Spasms: A Community Call to Action." Join us for this Town Hall educational opportunity to learn how groundbreaking clinical trials are working toward preventing infantile spasms and other types of seizures in TSC. Learn how and why TSC community involvement is crucial to the success of clinical research for individuals of all ages and what you can do to help. Click here for more information.

9/23/2015--Adults with Informational Call - Nationwide

Are you an independent or semi-independent adult with TSC? If so, please join us for this free informational call on "Anxiety."  To participate in, use the toll-free call in number: 1-866-613-5223 then enter access code: 4334003#.  Each call's length is one hour starting at 8 p.m. Eastern, 7 p.m. Central, 6 p.m. Mountain, 5 p.m. Pacific If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

9/26/2015--Regional TSC Conference - Winston-Salem, NC
Join the TS Alliance of the Carolinas for a Regional TSC Conference at the Wake Forest Baptist Medical Center Tuberous Sclerosis Clinic.  For more information and to register, please visit www.tsalliance.org/conferences.

9/26/2015--Step Forward to Cure TSC - Houston, TX
Join the TS Alliance of Houston for the annual Step Forward to Cure TSC to be held at MacGregor Park in Houston, TX. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Bill and Taska Fields at tfields54@msn.com. For more details, visit www.StepForwardtoCureTSC.org.

9/26/2015--Step Forward to Cure TSC - Hilton Head, SC
Join the TS Alliance of the Carolinas for the annual Step Forward to Cure TSC to be held at Jarvis Creek Park in Hilton Head, SC.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Amy Bredeson at acbredeson@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

9/26/2015--Step Forward to Cure TSC – Liverpool, NY

Join the TS Alliance of New York and New Jersey for the annual Step Forward to Cure TSC to be held at Onondaga Lake Park c/o Willow Bay Shelter in Liverpool, NY.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Bridgett Langstaff at bclangstaff@mac.com. For more details, visit www.StepForwardtoCureTSC.org.

9/27/2015--Step Forward to Cure TSC - Winston-Salem, NC
Join the TS Alliance of the Carolinas for the annual Step Forward to Cure TSC to be held at Miller Park in Winston-Salem, NC.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Gail Saunders at gsaunders@tsalliance.org. For more details, visit www.StepForwardtoCureTSC.org.

9/30/2015--Four Decades | One Community Celebration - Minneapolis, MN

Plan now to join the TS Alliance of the Upper Midwest for a spectacular evening of theatre during a special "Four Decades | One Community Celebration" at the New Century Theatre in Minneapolis. Event starts at 6 pm. For complete details and to purchase tickets online, visit www.tsalliance.org/4decades today.

October 2015

10/3/2015--Town Hall Meeting - Dallas, TX
"Clinical Research and Infantile Spasms: A Community Call to Action." Join us for this Town Hall educational opportunity to learn how groundbreaking clinical trials are working toward preventing infantile spasms and other types of seizures in TSC. Learn how and why TSC community involvement is crucial to the success of clinical research for individuals of all ages and what you can do to help. Click here for more information.

10/8/2015--Four Decades | One Community Celebration - Washington, DC

Plan now to join the TS Alliance of DC Metro for a spectacular evening of theatre during a special "Four Decades | One Community Celebration" at the Woolly Mammoth Theatre in Washington, DC. Event starts at 6 pm. For complete details and to purchase tickets online, visit www.tsalliance.org/4decades today.

10/10/2015--Town Hall Meeting - Walnut Creek, CA
"Clinical Research and Infantile Spasms: A Community Call to Action." Join us for this Town Hall educational opportunity to learn how groundbreaking clinical trials are working toward preventing infantile spasms and other types of seizures in TSC. Learn how and why TSC community involvement is crucial to the success of clinical research for individuals of all ages and what you can do to help. Click here for more information.

10/11/2015--Educational Meeting - Minneapolis, MN
Join the TS Alliance of the Upper Midwest for “Special Needs Planning” from 2-4 p.m. RSVP for complete address to Kari at kaihle@msn.com or 612-281-5759.

10/11/2015--Step Forward to Cure TSC – Seattle, WA

Join the TS Alliance of the Pacific Northwest for the annual Step Forward to Cure TSC to be held at Warren G. Magnuson Park in Seattle, WA.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Devon McCollum at devonmccollum@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

10/11/2015--Step Forward to Cure TSC – Allison, PA

Join the TS Alliance of Western Pennsylvania for the annual Step Forward to Cure TSC to be held at North Park Harmar Pavilion in Allison, PA.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Kelsey Hudson at jjsmom0905@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

10/14/2015--Adults with Informational Call - Nationwide

Are you an independent or semi-independent adult with TSC? If so, please join us for this free informational call on "Communication."  To participate in, use the toll-free call in number: 1-866-613-5223 then enter access code: 4334003#.  Each call's length is one hour starting at 8 p.m. Eastern, 7 p.m. Central, 6 p.m. Mountain, 5 p.m. Pacific If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

10/17/2015--Step Forward to Cure TSC - Salt Lake City, UT
Join the TS Alliance of the Intermountain West for the annual Step Forward to Cure TSC to be held at Liberty Park in Salt Lake City, UT.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Alisa Lambros at lambrose.alisa@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

10/17/2015--Step Forward to Cure TSC – St. Louis, MO

Join the TS Alliance of St. Louis and Southern Illinois for the annual Step Forward to Cure TSC to be held at Cliff Cave Park in St. Louis, MO. If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Gwen Montaigne at tawanda1951@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

 

10/17/2015--Step Forward to Cure TSC – Collierville, TN
Join the TS Alliance of Tennessee for the annual Step Forward to Cure TSC to be held at H.W. Cox Park. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Brittany Schwaigert at bschwaigert23@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

10/17/2015--Step Forward to Cure TSC – Clark, NJ
Join the TS Alliance of New York and New Jersey for the annual Step Forward to Cure TSC to be held at Oak Ridge Park in Clark, NJ.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Tresha Bisang at jersey4424@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

10/17/2015--Town Hall Meeting - Cincinnati, OH
"Clinical Research and Infantile Spasms: A Community Call to Action." Join us for this Town Hall educational opportunity to learn how groundbreaking clinical trials are working toward preventing infantile spasms and other types of seizures in TSC. Learn how and why TSC community involvement is crucial to the success of clinical research for individuals of all ages and what you can do to help. Click here for more information.

10/17/2015--Town Hall Meeting - Houston, TX
"Clinical Research and Infantile Spasms: A Community Call to Action." Join us for this Town Hall educational opportunity to learn how groundbreaking clinical trials are working toward preventing infantile spasms and other types of seizures in TSC. Learn how and why TSC community involvement is crucial to the success of clinical research for individuals of all ages and what you can do to help. Click here for more information.

10/24/2015--Step Forward to Cure TSC – Gardner, KS

Join the TS Alliance of Greater Kansas City for the annual Step Forward to Cure TSC to be held at Celebration Park in Gardner, KS.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Gail Saunders at gsaunders@tsalliance.org. For more details, visit www.StepForwardtoCureTSC.org.

10/24/2015--Town Hall Meeting - St. Louis, MO
"Clinical Research and Infantile Spasms: A Community Call to Action." Join us for this Town Hall educational opportunity to learn how groundbreaking clinical trials are working toward preventing infantile spasms and other types of seizures in TSC. Learn how and why TSC community involvement is crucial to the success of clinical research for individuals of all ages and what you can do to help. Click here for more information.

November 2015

11/7/2015--Step Forward to Cure TSC – Walnut Creek, CA

Join the TS Alliance of Northern California for the annual Step Forward to Cure TSC to be held at Heather Farm Park in Walnut Creek, CA.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Diane Burgis at diane_burgis@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

11/7/2015--Town Hall Meeting - Miami, FL
"Clinical Research and Infantile Spasms: A Community Call to Action." Join us for this Town Hall educational opportunity to learn how groundbreaking clinical trials are working toward preventing infantile spasms and other types of seizures in TSC. Learn how and why TSC community involvement is crucial to the success of clinical research for individuals of all ages and what you can do to help. Click here for more information.

11/7/2015--Town Hall Meeting - Denver, CO
"Clinical Research and Infantile Spasms: A Community Call to Action." Join us for this Town Hall educational opportunity to learn how groundbreaking clinical trials are working toward preventing infantile spasms and other types of seizures in TSC. Learn how and why TSC community involvement is crucial to the success of clinical research for individuals of all ages and what you can do to help. Click here for more information.

11/8/2015--Town Hall Meeting - St. Paul, MN
"Clinical Research and Infantile Spasms: A Community Call to Action." Join us for this Town Hall educational opportunity to learn how groundbreaking clinical trials are working toward preventing infantile spasms and other types of seizures in TSC. Learn how and why TSC community involvement is crucial to the success of clinical research for individuals of all ages and what you can do to help. Click here for more information.

11/8/2015--Town Hall Meeting - Boston, MA
"Clinical Research and Infantile Spasms: A Community Call to Action." Join us for this Town Hall educational opportunity to learn how groundbreaking clinical trials are working toward preventing infantile spasms and other types of seizures in TSC. Learn how and why TSC community involvement is crucial to the success of clinical research for individuals of all ages and what you can do to help. Click here for more information.

11/14/2015--Step Forward to Cure TSC – Miami, FL

Join the TS Alliance of Florida for the annual Step Forward to Cure TSC to be held at Florida International University in Miami, FL.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Vanessa Vazquez at vanessavazquez@bellsouth.net. For more details, visit www.StepForwardtoCureTSC.org.

11/14/2015--Town Hall Meeting - Atlanta, GA
"Clinical Research and Infantile Spasms: A Community Call to Action." Join us for this Town Hall educational opportunity to learn how groundbreaking clinical trials are working toward preventing infantile spasms and other types of seizures in TSC. Learn how and why TSC community involvement is crucial to the success of clinical research for individuals of all ages and what you can do to help. Click here for more information.

11/18/2015--Adults with Informational Call - Nationwide

Are you an independent or semi-independent adult with TSC? If so, please join us for this free informational call on "Depression."  To participate in, use the toll-free call in number: 1-866-613-5223 then enter access code: 4334003#.  Each call's length is one hour starting at 8 p.m. Eastern, 7 p.m. Central, 6 p.m. Mountain, 5 p.m. Pacific If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

11/21/2015--Town Hall Meeting - Chicago, IL
"Clinical Research and Infantile Spasms: A Community Call to Action." Join us for this Town Hall educational opportunity to learn how groundbreaking clinical trials are working toward preventing infantile spasms and other types of seizures in TSC. Learn how and why TSC community involvement is crucial to the success of clinical research for individuals of all ages and what you can do to help. Click here for more information.