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Current Events

April 2015

4/8/2015--Community Gathering - Elk Grove, IL
Join the TS Alliance of Greater Chicago for a TSC community gathering from 7 – 9 p.m. at the Alexian Brothers Medical Center in Elk Gove, IL. Don’t miss this opportunity to connect with other local TSC individuals and families!  For complete details and to RSVP, download the flyer.

4/9/2015--Dependent Adult with TSC Topic Call - Nationwide
Are you the parent or caregiver of dependent adult with TSC? If so, please join the TS Alliance for this free informational call, "Achieving a Better Life (ABLE)," presented by Kelly Placenti, Assistant Vice President, MetLife Center for Special Needs and Steve Hodson, Financial Services Representative Financial Planner, Metlife. To participate, call 760-984-1000 then enter access code: 151396#.  This event will last one hour starting at 8 p.m. Eastern, 7 p.m. Central, 6 p.m. Mountain, 5 p.m. Pacific. If you have questionsl, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

4/11/2015--Educational Meeting - Nashville, TN
Join the TS Alliance of Tennessee for a Q&A with Dr. Kevin Ess from 2 to 4 p.m. at Vanderbilt Hospital (Nashville) in Wadlington Room A&B.  Refreshments will be provided. For more information and to RSVP, download the flyer.

4/12/2015--14th Annual Comedy for a Cure - Universal City, CA
The 14th Annual Comedy for a Cure will be held at The Globe Theatre at Universal Studios.  Join Jim O’Heir, Honorary Chair; Mo Collins, Emcee; and comedy performances by Retta and Craig Shoemaker for a fun-filled evening of laughter and hope.  Help us in celebrating our esteemed honorees the Ron Heffron Family and Helena Foulkes, President, CVS/pharmacy and Executive Vice President, CVS Health.  The 2015 Comedy for a Cure event is dedicated to the Goff family, in loving memory of Tiara. Online ticket sales now available.

4/18/2015--Step Forward to Cure TSC - Scottsdale, AZ
Join the TS Alliance of Arizona for the annual Step Forward to Cure TSC to be held at Eldorado Park in Scottsdale, AZ. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Debora Moritz at deboramoritz@hotmail.com. For more details, visit www.StepForwardtoCureTSC.org.

4/25/2015--Step Forward to Cure TSC - Mountain Brook, AL
Join the TS Alliance of Atlanta/N. Georgia for the annual Step Forward to Cure TSC to be held at 50 Oak St. (Field directly across from the Emmet O’Neal Library) in Mountain Brook, AL. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Carole Pitard at ccpitard@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

May 2015

5/2/2015--Step Forward to Cure TSC - Wyomissing, PA
Join the TS Alliance of the Delaware/Lehigh Valley for the annual Step Forward to Cure TSC to be held at Gring’s Mill in Wyomissing, PA. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Shelly Meitzler at mom2ashlin@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

5/3/2015--Regional TSC Conference - St. Paul, MN
Join the TS Alliance of the Upper Midwest for a Regional TSC Conference at United Hospital, hosted by the TSC Clinic Without Walls.  For more information and to register, please visit www.tsalliance.org/conferences.

5/3/2015--Step Forward to Cure TSC - South Windsor, CT
Join the TS Alliance of Connecticut for the annual Step Forward to Cure TSC to be held at Rotary Pavilion at Sand Hill/Nevers Park in South Windsor, CT. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Rebecca Thereault at rebecca.flor@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

5/9/2015--Step Forward to Cure TSC - Frisco, TX
Join the TS Alliance of the Dallas/Ft. Worth Area for the annual Step Forward to Cure TSC to be held at Frisco Commons Park in Frisco, TX. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Joy Graydon at jgraydon10@hotmail.com. For more details, visit www.StepForwardtoCureTSC.org.

5/11/2015--Wyss Family Symposium on Genetic Predisposition to Brain Cancer - Columbus, OH
The Wyss Family Symposium on Genetic Predisposition to Brain Cancer will be held at the Hilton Columbus Downtown on May 11-12, 2015. Tuberous sclerosis complex is one featured topic. For more information and to register online, visit www.nationwidechildrens.org/wyss-family-symposium.

5/16/2015--New England Educational Meeting - Waltham, MA
Join the TS Alliance of New England for an Educational Meeting on "Sleep Disorders and TSC," from 10 am to 1 pm at Boston Children's Hospital at Waltham.  For complete details and to RSVP, download the flyer.

5/16/2015--Step Forward to Cure TSC - Long Beach, CA
Join the TS Alliance of Southern California for the annual Step Forward to Cure TSC to be held at El Dorado Park-East in Long Beach, CA. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Barbara O’Neill at zin.wine@verizon.net. For more details, visit www.StepForwardtoCureTSC.org.

5/16/2015--Step Forward to Cure TSC - Galesburg, IL
Join the TS Alliance of Greater Chicago for the annual Step Forward to Cure TSC walkathon to be held at Lake Storey Recreational Area in Galesburg, IL. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Karen Johnson Wenger at Jkarjo@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

5/16/2015--Community Gathering - Tampa, FL
Join the TS Alliance of Florida for a community gathering at Picnic Island Park in Tampa, FL from 11 a.m. – 2 p.m.! Don’t miss this opportunity to meet other local individuals and families affected by TSC. For more information or to RSVP contact Amy at amynicolehightower@gmail.com or 813-313-7210.

5/23/2015--Step Forward to Cure TSC - Breaux Bridge, LA
Join the TS Alliance of the Delta Region for the annual Step Forward to Cure TSC to be held at Parc Hardy Park in Breaux Bridge, LA. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please Katie Christensen at cajuncuties@outlook.com. For more details, visit www.StepForwardtoCureTSC.org.

5/29/2015--Baseball Night - New Britain, CT
Join the TS Alliance of Connecticut for their annual Rockcats baseball game to support the TS Alliance! Tickets are $6 each. Children 4 and under are free (if sitting on parents lap during the game) and the deadline for ordering is Friday, May 14. Don't miss this opportunity to connect with other local TSC individuals and families while enjoying the game! Download the flyer for more details. Contact Claire or Jeff Borkowski with any questions at 860-426-9099 or jcborkowski@cox.net.

5/30/2015--5th Annual Rock 4 Riley - Woburn, MA
Please join the Vogel Family as they host the 5th Annual Rock 4 Riley on May 30 from 7 to 11 pm. The 2015 event will feature live music from Fast Times, great food, fabulous raffle prizes, a silent auction and even a few surprises. Don’t miss this rockin’ evening at Woburn Elks Lodge located at 295 Washington Street in Woburn, MA.  To get your tickets or make a donation, please click here.

5/30/2015--Step Forward to Cure TSC - Westmont, IL
Join the TS Alliance of Greater Chicago for the annual Step Forward to Cure TSC to be held at Ty Warner Park and Pavilion in Westmont, IL. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Geri Greenberg at tscgreaterchicago@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

June 2015

6/6/2015--Step Forward to Cure TSC - Nashville, TN
Join the TS Alliance of Tennessee for the annual Step Forward to Cure TSC to be held at Two Rivers Park in Nashville, TN. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Kelly Vigil at tsalliancemidtn@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

6/6/2015--Step Forward to Cure TSC National Walk on the Mall - Washington, DC
Join the TS Alliance of DC Metro for the annual Step Forward to Cure TSC National Walk on the Mall to be held at Constitution Gardens in Washington, DC. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please Brooke Carpenter at brooke_carpenter@hotmail.com. For more details, visit www.StepForwardtoCureTSC.org.

6/7/2015--Step Forward to Cure TSC - Roseville, MN
Join the TS Alliance of the Upper Midwest for the annual Step Forward to Cure TSC to be held at Central Park – Jaycees Shelter in Roseville, MN. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Jody Prudhomme at jody_prudhomme@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

6/13/2015--Step Forward to Cure TSC - Lansing, MI
Join the TS Alliance of Michigan for the annual Step Forward to Cure TSC to be held at Granger Meadows Park – Pavilion 1 in Lansing, MI. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Treasa Bolger-Dunlap at mtbolger@comcast.net. For more details, visit www.StepForwardtoCureTSC.org.

6/13/2015--Step Forward to Cure TSC - Marietta, GA
Join the TS Alliance of Atlanta/North Georgia for the annual Step Forward to Cure TSC to be held at Marietta Square in Marietta, GA. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Becky Ruppe at arial2728@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

6/13/2015--Step Forward to Cure TSC - Northglenn, CO
Join the TS Alliance of the Rocky Mountain Region for the annual Step Forward to Cure TSC to be held at EB Rains Park in Northglenn, CO. If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Leslie Byers at lbyers0401@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

6/13/2015--Step Forward to Cure TSC – Huber Heights, OH
Join the TS Alliance of Ohio for the annual Step Forward to Cure TSC to be held at Thomas A Cloud Park in Huber Heights, OH. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Lola Centeno at ohiotsc@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

6/13/2015--Educational Meeting - Concord, NC
Join the TS Alliance of the Carolinas for an educational meeting with guest speaker Dr. Katherine Van Poppel, pediatric neurologist at the Carolinas HealthCare System. The meeting will be held at the Cabarrus County Public Library at 2 p.m. RSVP to Jeff at zzdavisl@yahoo.com or 803-351-6639.  Download the flyer for more information.

6/27/2015--Regional TSC Conference - Stanford, CA
Join the TS Alliance of Northern California for a Regional TSC Conference at the Northern California TSC Clinic at Lucille Packard Children’s Hospital, Stanford Hospital and Clinics.  For more information and to register, please visit www.tsalliance.org/conferences.

July 2015

7/18/2015--Automobiles for a Cause: Car Show - Indianapolis, IN
Indiana Oxygen Company presents Automobiles for a Cause: Car Show. Join the Indiana Oxygen Company as they celebrate their 100th anniversary by giving back. All proceeds will go to the TS Alliance from this great event. You can see more information by clicking here or call Ty Guernsey at 317-418-7998. Come on out and enjoy a great day of cars, hot dogs, drinks, auction, raffle and more!  Download the registration form for submission.

September 2015

9/10/2015--2015 International TSC Research Conference - Windsor, UK
The 2015 International Research Conference on Tuberous Sclerosis Complex: From Treatment to Prevention will be held September 10-12 at the Mercure Windsor Castle Hotel in Windsor, UK.  Click here for more information.

9/12/2015--Step Forward to Cure TSC - Auburndale, MA
Join the TS Alliance of New England for the annual Step Forward to Cure TSC to be held at Auburndale Park in Auburndale, MA.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Stacie Verrill at kscverrill@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

9/19/2015--Step Forward to Cure TSC – Wantagh, NY
Join the TS Alliance of New York and New Jersey for the annual Step Forward to Cure TSC to be held at Wantagh Park in Wantagh, NY. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Rob and Denise Spear at rspear96@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

9/26/2015--Regional TSC Conference - Winston-Salem, NC
Join the TS Alliance of the Carolinas for a Regional TSC Conference at the Wake Forest Baptist Medical Center Tuberous Sclerosis Clinic.  For more information and to register, please visit www.tsalliance.org/conferences.

9/26/2015--Step Forward to Cure TSC - Houston, TX
Join the TS Alliance of Houston for the annual Step Forward to Cure TSC to be held at MacGregor Park in Houston, TX. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Bill and Taska Fields at tfields54@msn.com. For more details, visit www.StepForwardtoCureTSC.org.

9/26/2015--Step Forward to Cure TSC - Hilton Head, SC
Join the TS Alliance of the Carolinas for the annual Step Forward to Cure TSC to be held at Jarvis Creek Park in Hilton Head, SC.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Amy Bredeson at acbredeson@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

9/27/2015--Step Forward to Cure TSC - Winston-Salem, NC
Join the TS Alliance of the Carolinas for the annual Step Forward to Cure TSC to be held at Miller Park in Winston-Salem, NC.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Gail Saunders at gsaunders@tsalliance.org. For more details, visit www.StepForwardtoCureTSC.org.

October 2015

10/17/2015--Step Forward to Cure TSC - Salt Lake City, UT
Join the TS Alliance of the Intermountain West for the annual Step Forward to Cure TSC to be held at Liberty Park in Salt Lake City, UT.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Alisa Lambros at lambrose.alisa@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

10/17/2015--Step Forward to Cure TSC – St. Louis, MO

Join the TS Alliance of St. Louis and Southern Illinois for the annual Step Forward to Cure TSC to be held at Cliff Cave Park in St. Louis, MO. If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Gwen Montaigne at tawanda1951@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

 

10/17/2015--Step Forward to Cure TSC – Collierville, TN
Join the TS Alliance of Tennessee for the annual Step Forward to Cure TSC to be held at H.W. Cox Park. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Brittany Schwaigert at bschwaigert23@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

10/17/2015--Step Forward to Cure TSC – Clark, NJ
Join the TS Alliance of New York and New Jersey for the annual Step Forward to Cure TSC to be held at Oak Ridge Park in Clark, NJ.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Tresha Bisang at jersey4424@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.