Individuals & Families

Missouri

Community Alliances

TS Alliance of Greater Kansas City →

TS Alliance of St. Louis and Southern Illinois →

TSC Connect Contacts

Education Parent Mentor

Rene Friedel, 618-654-6844, rfriedel@charter.net

Adult Regional Coordinator

Jake Irby (Adult), Austin, TX, 512-586-8895, Irby.jake@gmail.com

TSC Clinics

Kansas City
Children’s Mercy Hospital
Director: Mohammed Ilyas, MD
Co-Director: Bryce Heese, MD
Coordinator: Megan Gustafson, MSN, RN, CPNP
Age Range Seen: New patients up to age 21 years.
Clinic Frequency: Monthly, every fourth Thursday.
For Clinic Information call (913) 696-8254 and to schedule an appointment call (816) 983-6924 ext. 56924.

St. Louis         
Cardinal Glennon Children’s Hospital, Saint Louis University School of Medicine
Director: Vikram Prakash, MD
Co-Director: L. Richard Feldenberg, MD
Coordinators: Julie Enbel, RN and Ashley Bollinger, RN
Age Range Seen: New patients up to age 20 years.
Clinic Frequency: Monthly, every third Thursday.
For Clinic Information and to schedule an appointment call (314) 268-2737.

St. Louis
Washington University Tuberous Sclerosis Clinic
Director: Michael Wong, MD, PhD
Co-Director: Anna Jeong, MD
Coordinator: Ashley Fasciola, RN, BSN
Clinic Ambassadors: Rene Friedel, rfriedel@charter.net
Age Range Seen: Children and adults
Clinic Frequency: Weekly
Out-of-State Medicaid Policy: Accepts Illinois only.
For appointments, call scheduling at (314) 454-6120. For TSC-related questions, call Laura Graves at (314) 454-6120.