Individuals & Families


Community Alliance

TS Alliance of Michigan →

TSC Connect Contacts

Adult Regional Coordinator

Brooke Simsa (Adult and Parent), Findlay, OH, 567-301-7528,

Dependent Adult Transition Resource Coordinator

Kathy Groves (Parent of an Adult), Brighton, MI, 810-588-6034,

TSC Clinics

Children’s Hospital of Michigan Tuberous Sclerosis Clinic
Director: Aimee Luat, MD
Coordinator: Summer Swanwick, RN, BSN, CNRN
Age Range Seen: Children up to age 21 years
Clinic Ambassador: Treasa Bolger-Dunlap,
Clinic Frequency: Monthly
Out-of-State Medicaid Policy: Accepts any that will reimburse.
To schedule an appointment, call 313-745-5788.

Grand Rapids
TSC Clinic at Helen DeVos Children’s Hospital
Director: Steven DeRoos, MD
Coordinator: Lauren Frans, RN
Age Range Seen: Children and adults
Clinic Frequency:  A joint clinic with adult neurology and urology is held every second Thursday of each month.
To schedule an appointment call the HDVCH Welcome Center at 616-267-2500.   For Urgent Appointments ask to speak to Lauren Frans, RN.

Royal Oak
Beaumont Health System Comprehensive TSC Clinic
Director: TBN
Co-Director: Anne Marie Michon, MSN, RN, CPNP-PC
Coordinator: Emily Salatka, BSN, RN
Age Range Seen: Children and Adults
Clinic Frequency: Bi-weekly every other Friday; however, patients will be seen outside of scheduled clinic days as needed.
For more information or to schedule an appointment, call Dawnielle Johnson at (248) 551-3302.