Individuals & Families


Community Alliance

TS Alliance of Michigan →

TSC Connect Contacts

Adult Regional Coordinator

Brooke Simsa (Adult and Parent), Findlay, OH, 567-301-7528,

Dependent Adult Transition Resource Coordinator

Kathy Groves (Parent of an Adult), Brighton, MI, 810-588-6034,

TSC Clinics

Children’s Hospital of Michigan Tuberous Sclerosis Clinic
Director: Aimee Luat, MD
Coordinator: Summer Swanwick, RN, BSN, CNRN
Age Range Seen: Children up to age 21 years
Clinic Ambassador: Treasa Bolger-Dunlap,
Clinic Frequency: Monthly
Out-of-State Medicaid Policy: Accepts any that will reimburse.
To schedule an appointment, call 313-745-5788.

Grand Rapids
TSC Clinic at Helen DeVos Children’s Hospital
Director: Steven DeRoos, MD
Coordinator: Michael Glaza, LPN
Age Range Seen: Children and adults
Clinic Frequency for Chldren: Bi-monthly
Clinic Frequency for Adults: Weekly
Children are seen at Helen DeVos Children’s Hospital; for appointments call the Neurology Scheduling Desk at (616) 267-2500. Adults are seen by Wendy J. Sherman, MD, at Spectrum Medical Group Neurology. If you are a new patient, your primary care doctor will need to fax a referral and your medical records to (616) 267-7594. A Central Scheduling Associate will then contact you to schedule the appointment. The Central Scheduling phone number is (612) 267-7600. 
Esta clínica cuenta con un doctor o un empleado que habla un poco de españolat.

Royal Oak
Beaumont Health System Comprehensive TSC Clinic
Director: TBN
Co-Director: Anne Marie Michon, MSN, RN, CPNP-PC
Coordinator: Emily Kreis, RN
Age Range Seen: Children and Adults
Clinic Frequency: Bi-weekly every other Friday; however, patients will be seen outside of scheduled clinic days as needed.
For more information or to schedule an appointment, call Dawnielle Johnson at (248) 551-3302.