Individuals & Families

Maine

Community Alliance

TS Alliance of New England →

TSC Connect Contacts

Adult Regional Coordinator

Scott Moskowitz (Adult), NY, 516-535-9105, scotttsc01@gmail.com

Nearby TSC Clinics

MASSACHUSETTS

Boston
The Carol and James Herscot Center for Children and Adults with Tuberous Sclerosis Complex 
Director: Elizabeth Thiele, MD, PhD
Coordinator: Jan Paolini, RN, MSN
Age Range Seen: Children and Adults
Clinic Frequency: Weekly
To schedule an appointment, please call (617) 726-0241.

Boston
Multi-Disciplinary Tuberous Sclerosis Program
Boston Children’s Hospital
Director: Mustafa Sahin, MD, PhD
Coordinator: Jennifer McCrave, RN, BSN, CNRN
Age Range Seen: Children and Young Adults
Clinic Frequency: Bi-monthly, Fridays 9 a.m. – 1 p.m. with add-on clinic sessions as needed.
Out-of-State Medicaid Policy: Accepts Maine, New Hampshire, Rhode Island and Vermont.
To schedule an appointment with Mustafa Sahin, MD, PhD in Pediatric Neurology, call Alicia Kutner at 617-355-8994.

NEW YORK

Bronx
Children’s Hospital at Montefiore (CHAM) Tuberous Sclerosis Center
Director: Fatema Malbari, MD
Administrative Coordinator: Linda Lightstone
Physician Assistant: Sheri Escalante, PA
Age Range Seen: Children and young adults up to age 21 years.
Clinic Frequency: Monthly, the first Tuesday morning of every month.
To schedule an appointment, call (718) 920-4378. 
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

New York City
New York Presbyterian/Columbia University Medical Center for Tuberous Sclerosis
Director: James J. Riviello, Jr., MD
Coordinator:  Elena Gonzalez, MSN, PNP, BC
Age Range Seen: Children and Adults.
Clinic Frequency: Appointments are scheduled as needed.
To schedule an appointment, call the TSC Center at (212) 342-1036.

New York City
TS Center at Mount Sinai Health System
Director: Steven Wolf, MD
Co-Director: Patricia McGoldrick, NP, MSN, MPA
Age Range Seen: Children and Adults
Clinic Frequency: Monday – Friday
To schedule an appointment, call (212) 844-6944.  Due to a high volume of calls, your call will rollover to an answering service after 4 rings.  If you are contacting the clinic for test or lab results or prescriptions, please email Isabela Arcila at iarcilla@chpnet.org.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

  1. Phillips Ambulatory Care Center at Mount Sinai Beth Israel – Daily office hours
  2. Developmental Disabilities Center at Roosevelt Hospital – Medical home model with daily office hours
  3. Comprehensive Pediatric Epilepsy Center-Mount Sinai Beth Israel – 7 day per week monitoring capability with inpatient service
  4. Hartsdale New York Pediatric Neurology/Epilepsy Office – Monday-Thursday Neurology coverage and Tuesday – Saturday EEG availability; contact iarcilla@chpnet.org.

New York City
The TS Center at New York University Langone Medical Center
(The TSC clinic at New York University (NYU) operates out of the NYU Comprehensive Epilepsy Center)
Director: Josiane LaJoie, MD
Coordinator: Kimberly Parker Menzer, NP
Age Range Seen: Children and Adults
Clinic Frequency: Daily as Needed
To schedule an appointment for a child, call (646) 558-0871; for adults call (646) 558-0803. 
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.