Individuals & Families

Kentucky

Community Alliance

TS Alliance of Kentucky/West Virginia →

TSC Connect Contacts

Adult Regional Coordinator

Mark Martin (Adult and Parent), Murfreesboro, TN, 860-794-9502, markamartin2002@yahoo.com

Dependent Adult Transition Resource Coordinator

Tammy Kouns (Parent), Raceland, KY, 606-571-3882, tammyskouns@gmail.com

Nearby TSC Clinics

OHIO

Cincinnati
The Tuberous Sclerosis Clinic
Founding Director: David N. Franz, MD
Director: Darcy Krueger, MD, PhD
Administrative Coordinator: Melody Gulleman
Coordinators: Cindy Tudor, CPNP and Karen Agricola, CFNP
Age Range Seen: Children and Adults
Clinic Frequency: Weekly
Out-of-state Medicaid: Accepts pending pre-authorization from the Medicaid provider.  There are financial assistance programs for those living in Indiana: Dearborn county; Kentucky: Boone, Campbell and Kenton counties; and Ohio: Butler, Clermont, Hamilton and Warren counties.  Ohio residents may qualify for the H-Cap program, which is for low income and based on federal poverty guidelines.  For further questions regarding these programs, contact Financial Services at (513) 636-0201.
To schedule an appointment or for information, contact Melody Gulleman at (513) 636-4222 or email TSclinic@cchmc.org
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Cleveland
TSC Care at CCF (The Cleveland Clinic Foundation)
Director: Ajay Gupta, MD, FAAP
Coordinator: Paula Klima, RN
Age Range: Children up to young adults
Clinic Frequency: First Wednesday of each month.  Clinic provides flexibility by coordinating multiple appointments in one visit over 1-2 days.
For more information or to schedule an appointment, call 1-800-CCF-CARE ext. 5TSC6 (1-800-223-2273 ext. 58726), 216-445-0601 or email tsc_care@ccf.org
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Columbus
Nationwide Children’s TSC Clinic
Director: E Steve Roach, MD
Co-Director: Monica P. Islam, MD
Coordinator: Joey Burns, RN, BSN, CNRN
Clinic Ambassador: Lola Centeno, ohiotsc@yahoo.com
Age Range: Children and Adults
Clinic Frequency: First and third Thursday of each month.  Third Thursday is with Geneticist.
For more information or to schedule an appointment, contact Patricia Jo Burns, RN, BSN, CNRN at (614) 722-4625; (614) 722-4633 (fax)

VIRGINIA

Charlottesville
The University of Virginia (UVA) Tuberous Sclerosis Clinic
Director: Laura A. Jansen, MD, PhD
Co-Director: Howard Goodkin, MD, PhD
Coordinator:  Brooke Henry, RN
Age Range: Children and Adults
Clinic Frequency: Fourth Friday of each month
To schedule an appointment, call (434) 924-2706 and ask to speak to Debbie Roberts.  For more information about the clinic, call Brooke Henry, RN, BSN at (434) 924-8672.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.