Individuals & Families

Indiana

Community Alliance

TS Alliance of Indiana →

TSC Connect Contacts

Adult Regional Coordinator

Brooke Simsa (Adult and Parent), Findlay, OH, 567-301-7528, brooke2330@gmail.com

Nearby TSC Clinics

ILLINOIS

Chicago 
University of Chicago

Director: James H. Tonsgard, MD (effective 7.1.2016)
Co-Director: Patti Ogden, APN, FNP, NP-C
Coordinator: Abby Cusack, RN, BSN, Telephone: 773-834-3456
Age Range Seen: Children and Young Adults
Clinic Frequency: Monthly, 1st Friday in Chicago.  Other appointment times can be accommodated.
Out-of-state Medicaid: Process to get approval may take several weeks. Contact clinic for details.
To schedule an appointment at the Chicago clinic, contact (773)702-6169 and Press “2” for specialty clinic.  To schedule an appointment with Dr. Kohrman in Merrillville, call (219) 756-1200. 
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Chicago  
Multidisciplinary TSC Clinic at the Ann & Robert H. Lurie Children’s Hospital of Chicago
Director: Srishti Nangia, MD
Administrative Coordinator: Clara Samaniego
Age Range Seen: Children under age 18 years
Clinic Frequency: Tailored to meet the patient’s needs.
To schedule an appointment call (312) 227-3540.

OHIO

Cincinnati
The Tuberous Sclerosis Clinic
Founding Director: David N. Franz, MD
Director: Darcy Krueger, MD, PhD
Administrative Coordinator: Melody Gulleman
Coordinators: Cindy Tudor, CPNP and Karen Agricola, CFNP
Age Range Seen: Children and Adults
Clinic Frequency: Weekly
Out-of-state Medicaid: Accepts pending pre-authorization from the Medicaid provider.  There are financial assistance programs for those living in Indiana: Dearborn county; Kentucky: Boone, Campbell and Kenton counties; and Ohio: Butler, Clermont, Hamilton and Warren counties.  Ohio residents may qualify for the H-Cap program, which is for low income and based on federal poverty guidelines.  For further questions regarding these programs, contact Financial Services at (513) 636-0201.
To schedule an appointment or for information, contact Melody Gulleman at (513) 636-4222 or email TSclinic@cchmc.org
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Cleveland
TSC Care at CCF (The Cleveland Clinic Foundation)
Director: Ajay Gupta, MD, FAAP
Coordinator: Paula Klima, RN
Age Range: Children up to young adults
Clinic Frequency: First Wednesday of each month.  Clinic provides flexibility by coordinating multiple appointments in one visit over 1-2 days.
For more information or to schedule an appointment, call 1-800-CCF-CARE ext. 5TSC6 (1-800-223-2273 ext. 58726), 216-445-0601 or email tsc_care@ccf.org
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Columbus
Nationwide Children’s TSC Clinic
Director: E Steve Roach, MD
Co-Director: Monica P. Islam, MD
Coordinator: Joey Burns, RN, BSN, CNRN
Clinic Ambassador: Lola Centeno, ohiotsc@yahoo.com
Age Range: Children and Adults
Clinic Frequency: First and third Thursday of each month.  Third Thursday is with Geneticist.
For more information or to schedule an appointment, contact Patricia Jo Burns, RN, BSN, CNRN at (614) 722-4625; (614) 722-4633 (fax).