Individuals & Families

California

Community Alliances

TS Alliance of Northern California →

TS Alliance of Southern California →

TSC Connect Contacts

Adult Regional Coordinators

Rob & Shannon Grandia (Parents and Adult/Spouse), Riverside, CA, 951-697-8851, Grandia@verizon.net

Dependent Adult Transition Resource Coordinator

Shannon Grandia (Parent and Spouse), Riverside, CA, 951-697-8851, Grandia@verizon.net

TSC Clinics

Loma Linda
The Tuberous Sclerosis Clinic at Loma Linda University Health Care
Located at 250 E. Caroline St. Suite J West, San Bernardino, CA 92408
Director: Stephen Ashwal, MD
Coordinator: Jessica Jun, RN
Age Range Seen: Children and Adults
Clinic Frequency: Every first Thursday of the month.
For more information or to schedule an appointment call (909) 835-1810. This is the phone number for the pediatric neurology specialty clinic, which includes TSC.  Inform the scheduler that you are calling to make an appointment to see Dr. Ashwal in the TSC Clinic.  
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Los Angeles
UCLA Pediatric Neurology TSC Clinic
Director: Joyce Y. Wu, MD
Administrative Coordinator: Janet Kor
Age Range Seen: Children.
Clinic Frequency: Twice monthly on Monday afternoons.
Out-of-State Medicaid Policy: Requires one-time agreement with UCLA.
To schedule an appointment or for information on how to get a new patient referred to the TSC clinic please contact Janet at (310) 206-4037.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Los Angeles
Children’s Hospital Los Angeles/USC
Director: Tena Rosser, MD
Coordinator: Jamie Gruen, RN
Age Range Seen: New patients under age 18 years.
Clinic Frequency: Currently seen in Dr. Rosser’s weekly Neurocutaneous Clinic or as part of her general child neurology clinic.
For Clinic Information call (323) 361-3455. To schedule an appointment call the CHLA Appointment Center at (323) 361-2471.

Oakland
The Jack and Julia Center for Tuberous Sclerosis Complex at UCSF Benioff Children’s Hospital Oakland
Director: Rachel Kuperman, MD
Co-Director: Carrie Krupitsky, RN, FNP
Administrative Coordinator: Mariana Villagran
Clinic Ambassador: Jane Schoenfeld, jane.schoenfeld@gmail.com
Age Range Seen: Infants to Adults
Clinic Frequency: Tuesday Mornings
To schedule an appointment, contact Mariana Villagran at (510) 428-3885 ext. 4543.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Orange
Children’s Hospital of Orange County TSC Clinic
Director: Mary L. Zupanc, MD
Co-Director: Lily H. Tran, MD
Coordinator: To be named
Age Range Seen: Children
Clinic Frequency: Quarterly where patients meet with specialists in one afternoon. These visits are for new TSC patients and for current patients as their annual evaluations to make sure they are up-to-date on their TSC care.  Follow-up visits for TSC patients are scheduled as needed in the Neurology/Epilepsy Clinic, which occurs monthly.
To schedule an appointment, contact Debbie Merced at (714) 509-4013.

San Diego
Rady Children’s Hospital San Diego (RCHSD)/UC San Diego (UCSD) Comprehensive TSC Clinic
Director: Doris A. Trauner, MD
Coordinator: Cheryl Orphan, RN
Age Range Seen: Children and Adults
Clinic Frequency: Monthly every third Thursday and inpatient consults available on emergency and routine basis.
To schedule an appointment, call (858) 966-5819 option 2.

Stanford
Northern California TSC Clinic at Lucille Packard Children’s Hospital
Stanford Hospital and Clinics
Director: Brenda E. Porter, MD, PhDA
Administrative Coordinator: Noel Amazequita
Age Range Seen: Children will be seen by Dr. Porter at Lucille Packard Children’s Hospital. Adults will be seen by Dr. Scheherazade Le at Stanford Hospital & Clinic located at 300 Pasteur Drive, Third Floor, Room A301. Dr. Porter and Dr. Le who are specialists in neurology and epilepsy will refer patients to the appropriate specialists for evaluation and management of other issues related to TSC, as needed.
Clinic Frequency: weekly
For Appointments and Clinic Location: If you are a parent of a child 17 years or younger call (650) 723-0993 and speak to Noel Amazequita or leave a message for Dr. Porter.  If you are an adult with TSC or parent of a dependent adult with TSC, call (650) 498-7551 for New Patient Appointments to be seen by Dr. Scheherazade Le
Esta clínica cuenta con un doctor o un empleado que habla un poco de españolat (Dr. Le).