Healthcare Professionals

Professional Advisory Board

The TS Alliance’s Professional Advisory Board (PAB) is comprised of all TSC Clinic Directors as well as select specialists in the various manifestations of tuberous sclerosis complex.  PAB members serve three-year renewable terms beginning January 1 each year.

The PAB’s role is to serve in one or more of the following ways:

  • Serve as a reviewer for the TS Alliance Grants Program to review Letters of Intent and grant applications that are within the individual’s area of expertise.
  • Provide clinical expertise and advice to the TS Alliance staff and Board of Directors as requested
  • Provide general guidance within one’s area of expertise for assistance with specific clinical questions and/or clinical situations raised by other healthcare providers.
  • Prepare articles for the TS Alliance publications as needed.
  • Prepare TSC Information Sheets on specific clinical issues in TSC and/or review TSC Information Sheets prepared by other PAB members.
  • Bring new clinical information, publications, conferences, etc. to the attention of the TS Alliance staff.
  • Give presentations on specific issues in TSC at TS Alliance regional, national, and/or global conferences, as part of the Meet the Expert series.
  • Participate in a “meet and greet” community gathering such as a TS Alliance Step Forward to Cure TSC® walk or picnic.
  • Actively educate professional and lay audiences about tuberous sclerosis complex.
  • Foster partnerships and collaborations within advisor’s community of expertise.
  • Lend their name to be listed as a Honorary Committee member of TS Alliance major events (e.g. Comedy for a Cure, National Walk, World Conference).

Adrenals, Bladder, Kidneys, Testes

David H. Ewalt, MD
Urology Clinic of North Texas
Dallas, TX
Specialty: Urological Surgery

John Hulbert, MD
Urologic Physicians, P.A.
Edina, MN
Specialty: Urological Surgery

Central Nervous System/Epilepsy

Martina Bebin, MD, MPA
University of Alabama at Birmingham
Department of Neurology, Birmingham, AL
Specialty: Pediatric Neurology, Epilepsy

Stephen Ashwal, MD
Loma Linda School of Medicine
Department of Pediatrics
Loma Linda, CA
Specialty: Pediatric Neurology

Deborah Briggs, MD
Seton Brain and Spine Institute
Dell Medical School
Neurology
Austin, TX
Specialty: Neurology, Epilepsy

Kevin Chapman, MD
Children’s Hospital Colorado
Denver, CO
Specialty:  Pediatric Neurology, Epilepsy 

Harry T. Chugani, MD
Nemours/Alfred I. duPont Hospital for Children
Pediatric Neurology
Wilmington, DE
Specialty: Pediatric Neurology, Epilepsy

Rohini Coorg, MD
Texas Children’s Hospital / Baylor College of Medicine
Pediatric Neurology
Houston, TX
Specialty: Pediatric Neurology, Epilepsy

Peter Crino, MD, PhD
University of Maryland School of Medicine
Department of Neurology
Baltimore, MD
Specialty: Adult Neurology, Epilepsy

Steven DeRoos, MD
Helen DeVos Children’s Hospital
Grand Rapids, MI
Specialty: Pediatric Neurology, Pediatrics

Orrin Devinsky, MD

NYU Langone Comprehensive Epilepsy Center
New York, NY
Specialty: Neurology, Epilepsy

Francis J. DiMario, Jr., MD
Connecticut Children’s Medical Center
Division of Pediatric Neurology
Farmington, CT
Specialty: Pediatric Neurology, Pediatrics

Cornelia Drees, MD
University Hospital Colorado
Department of Neurology
Aurora, CO
Specialty: Neurology, Epilepsy

Michael S. Duchowny, MD
Miami Children’s Hospital
Department of Neurology
Miami, FL
Specialty: Pediatric Neurology, Epilepsy 

David W. Dunn, MD
Riley Hospital for Children
Indiana University School of Medicine
Department of Neurology
Indianapolis, IN
Specialty: Pediatric Neurology, Psychiatry

Nancy J. Elling, RN, BSN, CPN
Children’s National Medical Center
Department of Neurology
Fairfax, VA
Specialty: Nursing (Neurology, Epilepsy)

Kevin C. Ess, MD, PhD
Vanderbilt University
Department of Neurology
Nashville, TN
Specialty: Pediatric Neurology, Epilepsy

Francis M. Filloux, MD
Primary Children’s Hospital
Salt Lake City, UT
Specialty: Pediatric Neurology, Pediatrics

J. Robert Flamini, MD
PANDA Neurology
Atlanta, GA
Specialty: Pediatric Neurology

David Neal Franz, MD
Cincinnati Children’s Hospital Medical Center
Department of Neurology
Cincinnati, OH
Specialty: Pediatric Neurology, Epilepsy

Michael D. Frost, MD
The Minnesota Epilepsy Group, P.A.
Saint Paul, MN
Specialty: Pediatric Neurology, Epilepsy 

Tanjala T. Gipson, MD
The Boling Center at the University of Tennessee Health Science Center and
LeBoheur Children’s Hospital
Memphis, TN
Specialty: Pediatrics, Pediatric  Neurology, Neurodevelopmental disabilities

Tal Gilboa, MD
Hadassah Medical Center
Jerusalem, ISRAEL
Specialty: Pediatric Neurology and Developmental Pediatrics

Howard P. Goodkin, MD, PhD
University of Virginia
Departments of Neurology and Pediatrics
Charlottesville, VA
Specialty: Pediatric Neurology

Ajay Gupta, MD
Cleveland Clinic
Department of Neurology
Cleveland, OH
Specialty: Pediatric Neurology, Epilepsy

Daphne Hasbani, MD, PhD
St. Christopher’s Hospital for Children
Philadelphia, PA
Specialty: Pediatric Neurology, Epilepsy

Monica P. Islam, MD
Nationwide Children’s Hospital
Ohio State University
Columbus, OH
Specialty: Pediatric Neurology

Laura A. Jansen, MD, PhD
University of Virginia at Charlottesville
Charlottesville, VA
Specialty: Pediatric Neurology, Epilepsy

Anna Jeong, MD
Ann & Robert H. Lurie Children’s Hospital of Chicago
Chicago, IL
Specialty: Pediatric Neurology, Epilepsy

Charuta Joshi, MBBS
Children’s Hospital Colorado
Division of Pediatric Neurology
Specialty: Pediatric Neurology; Epilepsy

Karen C. Keough, MD
Dell Children’s Medical Center
Austin, TX
Specialty: Pediatric Neurology, Epilepsy

Mary Kay Koenig, MD
University of Texas Health Science Center
Houston, TX
Specialty: Pediatric Neurology

Susan Koh, MD
University of Colorado
Division of Pediatric Neurology
Denver, CO
Specialty: Pediatric Neurology, Epilepsy

Michael Kohrman, MD
Akron Children’s Hospital
Department of Neurology
Akron, OH
Specialty: Pediatric Neurology, Epilepsy, Sleep Medicine

Darcy A. Krueger, MD, PhD
Cincinnati Children’s Hospital Medical Center
Cincinnati, OH
Specialty: General Neurology, Tuberous Sclerosis Complex

Carrie L. Krupitsky, RN, FNP
UCSF Benioff Children’s Hospital Oakland
Department of Neurology
Oakland, CA
Specialty: Family Nurse Practitioner

Rachel Kuperman, MD
UCSF Benioff Children’s Hospital Oakland
Department of Neurology
Oakland, CA
Specialty: Pediatric Neurology, Epilepsy

Scheherazade Le, MD
Stanford University and Clinics
Department of Neurology
Stanford, CA
Specialty: Neurology, Epilepsy

Ki Hyeong Lee, MD
Florida Hospital for Children
Orlando, FL
Specialty: Pediatric Neurology, Epilepsy

Aimee Luat, MD
Children’s Hospital Michigan
Pediatric Neurology
Detroit, MI
Specialty: Pediatric Neurology, Epilepsy

Fatema Malbari, MD
Children’s Hospital at Montefiore
Bronx, NY
Specialty: Pediatric Neurology

William McClintock, MD
Children’s National Medical Center
Department of Neurology
Fairfax, VA
Specialty: Pediatric Neurology

Patricia E. McGoldrick, PNP, MPA
Mount Sinai Beth Israel Roosevelt l
New York, NY
Specialty: Pediatric Nurse Practitioner (Neurology, Developmental Disabilities)

Kimberly Parker Menzer, ANP-BC, GNP-BC
New York University Langone Medical Center
New York, NY
Specialty: Adult Primary Care and Gerontological Nurse Practitioner (Neurology, Epilepsy) 

Anne Marie Michon, MSN, RN, CPNP-PC
Beaumont Children’s Hospital
Department of Pediatric Epilepsy
Royal Oak, MI
Specialty: Certified Pediatric Nurse Practitioner; Pediatric Epilepsy

Ian O’Neil Miller, MD
Miami Children’s Hospital
Department of Neurology
Miami, FL
Specialty: Pediatric Neurology, Epilepsy

Srishti Nangia, MD
New York Presbyterian/Weill Cornell Medical Center
Division of Child Neurology
New York, NY
Specialty: Pediatric Neurology, Epilepsy

Iris Noyman, MD
Soroka Medical Center affiliated with Ben Gurion University of the Negev
Be’er Sheva, Israel
Specialty: Pediatric Neurology; Epilepsy

Patricia (Patti) Ogden, APN, MSN
University of Chicago
Department of Pediatric Neurology
Chicago, IL
Specialty: Nurse practitioner, Epilepsy, Vagus Nerve Stimulation (Interrogation and Programming)

Scott Perry, MD
Cook Children’s Hospital
Department of Neurology
Ft. Worth, TX
Specialty: Pediatric Neurology

Donald J. Phillips, MD, MPH
CHOC Children’s
Orange, CA
Specialty: Pediatric Epilepsy, Neurology, Clinical Neurophysiology 

Brenda E. Porter, MD, PhD
Stanford University School of Medicine
Division of Child Neurology
Stanford, CA
Specialty: Pediatric Neurology, Epilepsy

James J. Riviello, Jr., MD
Texas Children’s Hospital
Section of Neurology and Developmental Neuroscience
Houston, TX
Specialty: Pediatric Neurology, Epilepsy

Steve Roach, MD
Ohio State University
Department of Neurology
Columbus, OH
Specialty: Pediatric Neurology

Mustafa Sahin, MD, PhD
Boston Children’s Hospital
Department of Neurology
Boston, MA
Specialty: Pediatric Neurology

Joo Hee Seo, MD, MSc

Florida Hospital for Children
Orlando, FL
Specialty: Pediatric Neurology, Epilepsy

Donald Shields, MD
University of California, Los Angeles
Division of Pediatric Neurology
Los Angeles, CA
Specialty: Pediatric Neurology & Epilepsy

Eric B. J. Ségal, MD 
Northeast Regional Epilepsy Group (NEREG) Comprehensive TS Clinic
Hackensack, NJ
Specialty: Pediatric Neurology, Epilepsy

Mary T. Silvia, MD
Wake Forest Baptist Medical Center
Department of Neurology
Winston-Salem, NC
Specialty: Pediatric Neurology, Clinical Neurophysiology, Epilepsy

Marcio A. Sotero de Menezes, MD
Swedish Neuroscience Institute
Pediatric Neuroscience Center
Seattle, WA
Specialty: Pediatric Neurology, Epilepsy

Steven P. Sparagana, MD
Texas Scottish Rite Hospital for Children
Department of Neurology
Dallas, TX
Specialty: Pediatric Neurology

Suzanne M. Strickland, MD
Medical College of Georgia
Georgia Regents University
Department of Child Neurology
Specialty: Pediatric Neurology, Epilepsy

Katherine Taub, MD
Children’s Hospital of Philadelphia
Philadelphia, PA
Specialty: Pediatric Neurology, Epilepsy

Elizabeth A. Thiele, MD, PhD
Massachusetts General Hospital
Department of Neurology
Boston, MA
Specialty: Pediatric Neurology, Epilepsy

James H. Tonsgard, MD
The University of Chicago Medicine
Comer Children’s Hospital
Chicago, IL
Specialty: Pediatric Neurology

Lily Hoang Tran, MD
Children’s Hospital Orange County
Orange, CA
Specialty: Pediatric Neurology, Epilepsy

Michal Tzadok, MD
Safra Children’s Hospital
Sheba Medical Center
Tel Hashomer, ISRAEL
Specialty: Pediatric Neurology

Katherine Van Poppel, MD
Carolinas Pediatric Neurology Center-Concord
Concord, NC
Specialty: Pediatric Neurology & Epilepsy

James W. Wheless, MD
LeBonheur Children’s Hospital
Pediatric Neurology
University of Tennessee
Memphis, TN
Specialty: Pediatric Neurology, Epilepsy

Shelley Williams, MD
Children’s Hospital
Department of Neurology
Pittsburgh, PA
Specialty: Pediatric Neurology, Epilepsy

David S. Wolf, MD, PhD
Children’s Healthcare of Atlanta/Emory University
Atlanta, GA
Specialty: Pediatric Neurology, Neuro-Oncology

Steven M. Wolf, MD
Mount Sinai Beth Israel Roosevelt
New York, NY
Specialty: Pediatric Neurology, Epilepsy

Matthew Wong, MD
Wake Forest Baptist Medical Center
Department of Neurology
Winston-Salem, NC
Specialty: Neurology, Clinical Neurophysiology, Epilepsy

Michael Wong, MD, PhD
Washington University School of Medicine
Department of Neurology
St. Louis, MO
Specialty: Pediatric Neurology, Epilepsy

Joyce Y. Wu, MD
University of California, Los Angeles
Division of Pediatric Neurology
Los Angeles, CA
Specialty: Pediatric Neurology, Epilepsy

Mary L. Zupanc, MD
Children’s Hospital Orange County
Orange, CA
Specialty: Pediatric Neurology, Epilepsy

Julie A. Matsumoto, MD, FACR
Department of Radiology and Medical Imaging
University of Virginia Health System
Charlottesville, VA
Specialty: Neuroradiology

Endocrinology

Pei-Lung Chen, MD, PhD
National Taiwan University Hospital
Taipei City, Taiwan
Specialty: Endocrinology, Metabolism, Medical Genomics

Eyes/Teeth

Mary Elizabeth Aronow, MD
Massachusetts Eye & Ear Infirmary
Harvard Medical School
Boston, MA
Specialty: Vitreoretinal Diseases, Intraocular Tumors, Ophthalmic Oncology

Elizabeth Gosnell, DMD, MS
Division of Pediatric Dentistry and Orthodontics
Cincinnati Children’s Hospital Medical Center
Cincinnati, OH
Specialty: Pediatric Dentistry

Miguel A. Materin, MD
Duke University Eye Center
Durham, NC
Specialty: Ophthalmic Oncology

Greg Mlynarczyk, DDS
Santa Rosa Dentistry
Santa Rosa, CA
Specialty: Dentistry

Genetics

Kira A. Dies, ScM, CGC
Boston Children’s Hospital
Boston, MA
Specialty: Genetic Counselor 

Bruce Korf, MD, PhD
University of Alabama Birmingham
Birmingham, AL
Specialty: Genetics, Neurology

David J. Kwiatkowski, MD, PhD
Genetics Lab, Hematology Division
Brigham and Women’s Hospital
Harvard Medical School
Boston, MA
Specialty: Genetic Research

Vinodh Narayanan, MD
APNNA – Arizona Pediatric Neurology & Neurogenetics Associates
Phoenix, AZ
Specialty: Pediatric Neurology, Neurogenetics

Katherine L. Nathanson, MD
University of Pennsylvania
Department of Medicine
Philadelphia, PA
Specialty: Clinical Genetics

Hope Northrup, MD
The University of Texas Medical School at Houston
Department of Pediatrics, Division of Medical Genetics
Houston, TX
Specialty: Pediatrics, Genetics

Keith K. Vaux, MD
Rady Children’s Hospital San Diego
Division of Medical Genetics
San Diego, CA
Specialty: Medical Genetics, Dysmorphology

Heart

Robb Romp, MD
Division of Pediatric Cardiology
University of Alabama
Children’s Alabama
Birmingham, AL
Specialty: Pediatric Cardiology

Kidneys

John Bissler, MD
St. Jude Pediatrics Research Hospital and
University of Tennessee Health Science Center
Division of Nephrology
Memphis, TN
Specialty: Pediatric Nephrology

Elizabeth Jo Coombs, BSN, RN
Pentec Health – Renal Nurse Educator
Specialty: TSC Nurse Educator in Nephrology   

Elahna Paul, MD, PhD
Massachusetts General Hospital
Pediatric Nephrology Associates
Boston, MA
Specialty: Pediatric Nephrology 

Rahmin A. Rabenou, MD
Southern Arizona VA Healthcare System & University of Arizona School of Medicine
Tucson, AZ
Specialty: Nephrology, Renal Angiomyolipoma

Joshua A. Samuels, MD, MPH
University of Texas Medical School at Houston
Department of Pediatrics
Houston, TX
Specialty: Pediatric Nephrology, Hypertension

Lungs

Souheil El-Chemaly, MD, MPH
Brigham and Women’s Hospital
Boston, MA
Specialty: Pulmonary Disease, LAM

Elizabeth P. Henske, MD
Brigham and Women’s Hospital
Harvard Medical School
Boston, MA
Specialty: Oncology/LAM

Frank McCormack, MD
University of Cincinnati School of Medicine
Pulmonary Division
Cincinnati, OH
Specialty: Pulmonology

Joel Moss, MD, PhD
National Heart, Lung, and Blood Institute, National Institutes of Health
Bethesda, MD
Specialty: Pulmonology 

Kai-Feng Xu, MD
Peking Union Medical College Hospital
Division of Respiratory Medicine
Beijing, China
Specialty: Pulmonology

Lisa R. Young, MD
Vanderbilt University
Nashville, TN
Specialty: Pediatric Pulmonology

Skin

Joannes (Joop) Grevelink, MD, PhD
Boston Dermatology & Laser Center
Boston, MA
Specialty: Dermatology

Joyce Teng, MD, PhD
Lucile Packard Children’s Hospital Stanford
Palo Alto, CA
Specialty: Dermatology 

Surgery (Epilepsy/SEGA)

Daniel Curry, MD
Texas Children’s Hospital
Baylor College of Medicine
Department of Neurosurgery
Houston, TX
Specialty: Pediatric Neurosurgery 

Howard Weiner, MD
Texas Children’s Hospital
Baylor College of Medicine
Department of Neurosurgery
Houston, TX
Specialty: Neurosurgery

TSC-Associated Neuropsychiatric Disorders (TAND)

Anna W. Byars, PhD
Cincinnati Children’s Hospital Medical Center
Cincinnati, OH
Specialty: Neuropsychology

David W. Dunn, MD
Riley Hospital for Children
Indiana University School of Medicine
Department of Neurology
Indianapolis, IN
Specialty: Pediatric Neurology, Psychiatry

Petrus J. de Vries, MBChB, MRCPsych, PhD
University of Cape Town
Department of Psychiatry and Mental Health
Child & Adolescent Psychiatry
Rondebosch, Cape Town
South Africa
Specialty: Developmental Neuropsychiatry

Tanjala T. Gipson, MD
The Boling Center at the University of Tennessee Health Science Center and
LeBoheur Children’s Hospital
Memphis, TN
Specialty: Pediatrics, Pediatric Neurology, Neurodevelopmental disabilities

Shafali Spurling Jeste, MD
UCLA Semel Institute/Neuropsychiatric Institute
Los Angeles, CA
Specialty: Developmental Neurology, Autism

Bryan H. King, MD
Children’s Hospital
Department of Psychiatry
Seattle, WA
Specialty: Child Psychiatry

Doris A. Trauner, MD
Rady Children’s Hospital San Diego
UC San Diego School of Medicine
Specialty: Pediatric Neurology, Neurodevelopmental Disabilities 

Jacqueline Weissman, MD, MS
Kennedy Krieger Institute
Baltimore, MD
Specialty: Pediatric Neurology, Neurodevelopmental Disabilities

Tumors/Cancer

Iris Fried, MD
Hadassah Medical Center, The Hebrew University
Jerusalem, Israel
Specialty: Pediatric Oncology

Cristina R. Ferrone, MD
Massachusetts General Hospital
Boston, MA
Specialty: Surgery-Oncology, Pancreatic Neuroendocrine Tumors

Elizabeth P. Henske, MD
Brigham and Women’s Hospital
Harvard Medical School
Boston, MA
Specialty: Oncology/LAM

Neha J. Patel, MD
American Family Children’s Hospital
Madison, WI
Specialty: Pediatric Neuro-Oncology 

Surya P. Redman, MD
Texas Children’s Cancer & Hematology Centers
Houston, TX
Specialty: Hematology-Oncology

David S. Wolf, MD, PhD
Children’s Healthcare of Atlanta/Emory University
Atlanta, GA
Specialty: Pediatric Neurology, Neuro-Oncology

Raymond Yeung, MD
University of Washington School of Medicine
Division of Surgery and Medical Genetics
Seattle, WA
Specialty: Surgery-Oncology

Other

Patricia A. Gibson, MSSW, DHL, ACSW
Wake Forest University School of Medicine
Baptist Medical Center
Department of Neurology
Comprehensive Epilepsy Information Service
Winston Salem, NC
Specialty: Social Work

Collin Hovinga, PharmD, MS, FCCP
Dell Children’s Medical Center
University of Texas Austin
Austin, TX
Specialty: Pharmacology, Epidemiology, Clinical Research

William G. Ward, MD
Novant Health Orthopedics & Sports Medicine
Winston-Salem, NC
Specialty: Orthopedic Surgery