Our Leadership

Operating Board of Directors

The Tuberous Sclerosis Alliance Board of Directors has general oversight, fiduciary, policy development and ambassadorial responsibilities. The board develops and approves strategic plans that define the framework that guides the TS Alliance staff in daily activities, moving the organization closer to achieving its mission.

Decision-making is led by the Executive Committee, which is composed of the Chair, Vice Chair (Chair Elect), Secretary, Treasurer, Immediate Past Chair and the organization’s President & CEO.  Other committees include Finance, Audit, Outreach, Governance, Compensation, Government Relations, Science/Medical and Fund Development.

Timothy Dills, Chair
Great Falls, VA

Beth Dean, Vice Chair 
Grayslake, IL

Rebecca Anhang Price, PhD, Secretary 
Chevy Chase, MD

Jim Maginn, Treasurer
Manhattan Beach, CA

David Fitzmaurice, Immediate Past Chair
Wyckoff, NJ

Martina Bebin, MD, MPA
Athens, AL

John Bissler, MD
Memphis, TN

Michael Caggiano 
McLean, VA

Cassandra Carroll
Oakland, CA

Sara Chieffo
Washington, DC

Margaret Cox
Vestavia, AL

Andrew Duffy, Ex-Officio
Toronto, ON

Bonnie Hogue Duffy
Chevy Chase, MD

Tom Gwinn
Parkland, FL

Laura Lubbers, PhD
Perkasie, PA

Brendan Manning, PhD
Boston, MA

David Michaels
Scarsdale, NY

Darren Miles 
Edina, MN

Debora Moritz
Scottsdale, AZ

Julie Scroggins
Beach Park, IL

Matthew Simonian
Humble, TX

TS Alliance Endowment Fund Board of Directors

The TS Alliance Endowment Fund is a separate fiduciary organization specifically chartered to receive gifts that will be invested to generate an income stream to help fulfill the mission of the TS Alliance. The Endowment Fund will ensure the TS Alliance has an ongoing source of funding to better serve those touched by tuberous sclerosis complex through research, support services and education.

Doug Loftus, Chair
Cincinnati, OH

David Michaels, Secretary
Scarsdale, NY

Rita DiDomenico, Treasurer
Staten Island, NY

James Achterhof
Palos Park, IL

Mark Carroll
Saratoga, CA

Corporate Advisory Board

The TS Alliance’s Corporate Advisory Board includes a group of dedicated professionals from a variety of industries who provide guidance and strategic support and act as advisors to the President and CEO.  This board will be called upon to offer assistance in the areas of business planning and operational growth, marketing and public relations, development and fundraising, infrastructure, technology and human resources.

Julianne Moore, Honorary Chair

Wilfred Cooper, Sr.
WNC & Associates

Orrin Devinsky, MD
NYU Epilepsy Center

Gail Gershon
Director, Employee Engagement
Gap Foundation Gap Inc.

Ken Kocher
Former President
LIDS Sports Group

Alan Marshall

MaryJane Mudd
Regional Communications Officer
American Red Cross of the Texas Gulf Coast

Sean C. Nolan
President & CEO
AveXis, Inc.

Henry Shapiro
Chief Executive Officer

John Thorpe Richards, Jr.
Bogorad and Richards, PLLC

James S. Richter
Winston & Strawn LLP

Chris Russell
Chief Executive Officer
Pillar Hotels

Marc Shapses
Executive Managing Director
Savills Studley

Judy Shoulak
EVP, President
North America Buffalo Wild Wings